- I was middle aged, lightly active and physically average.
- Which is to say, I could walk five miles around a local lake without any difficulty.
- Quick to kid, always ready with a joke or a pun.
- Mind like a steel trap – able to remember the smallest details, people, places and things.
- Self taught, learning a new profession and trying to grow independent business.
- Quick with technology, able to suss the functionality behind a new technology, often very quickly.
You know how your dad knows how to do all that? How he can walk you through that task or experience? I was able to do that. And I was quite proud to be able to help my family.
I’ve since had a full run of acute bilateral ECT, three times a week for four weeks. I’m also getting weekly ketamine experiences. I’ve done the ECT before, and in the past found it affected my memory, making it hard to remember things during the acute month. I had TMS with little to no memory impact. I’ve also had countless hours of talk therapy, group therapy at least weekly, and regular appointments with my psychiatrist to discuss physical options. These include a VNS device, MAOI patches, etc. This makes remembering anything tricky. I need to be on point with my note taking abilities, to avoid forgetting something straight away.
In the past, I was able to roll with the punches, just take memory issues in stride. For the most part, this experience has been much the same. Until one day a couple weeks ago in which something changed. Maybe not changed, but became estranged to me. There are times where I have to figure out if I know what’s going on, or am I learning something again? I was okay being in a situation in which I knew I either had to do some catching up, or maybe using memory aids to keep going with a task. I think what happened was that I started having more of these situations, and had to experience the re-discovery of what’s going on – and it was happening more often than not, or at least enough times that it became a normal part of my routine. So it wasn’t an odd happenstance, it was a regular situation to be in.
As a result, things are just generally a little fucked up. I no longer know everything. I am no longer able to just try something out and figure out how and where do it well. I can’t just drive somewhere. I need to drop the destination on my phone and be led that way. Even in a route where I know where I’m going and/or each part of the journey reveals the next leg of the trip – even those routes will provide me with times in which I don’t know where I am, or which direction to head. And actually, I need the track saved so I can look back and understand where and when I have gone before.
I find myself beginning to tell a tale I know well. Or express an opinion. But mid statement, I hear the energy drop out of my voice, and the confidence disappear. I finish what I was saying sheepishly if I can remember what it was. I find myself in situations where I’m not sure why I came to be in that place, or don’t know who or what is going on. I don’t remember people, places, or things. I’m quite good at vague generalizations to cover for these situations, and I use those tools quite often. The simple locations of buttons or controllers for something in the car, or a technology item in the house. I can see it and understand the functionality, but have to rediscover the utility.
I’m still trying to figure out how to highlight these situations, or explain that I don’t remember how to do something I know was used to be able to do, or explain to someone that I know that I’ve forgotten their name or role in my life.
I have begun to employ different tactics and tools to compensate for my failings. If it’s anything I can get support on my phone, I’m all over it. Google maps, or Facebook information, or even my “sent” mail and saved items, and some bookmarks. I transitioned to a professional password/security system a couple years ago, so remembering passwords isn’t an issue. But many of the things I used to use to verify my information, or travel distances and times in order to estimate arrival times. Complementary tools.
What do I expect to have completely lost? Anything during the acute timeframe/month is fair game, I suppose. Or specific appointments – I can use MyChart online to plan for and reconcile my upcoming activities. If it’s important, I work hard to take notes so even forgetting can be worked with. I’d love for all memories to come back, but hope at least the more unique adventures can be retained – or even just have enough information on it that I can recreate the memory in my mind.
There’s really no upside. Or is there? I suppose I can chalk up anything forgotten, and attribute it to the ECT. It’s also making me approach some situations differently. I need to be more open minded, flexible in my tactics and ready to change plans on short notice. My wife is much more attuned to my flaws and foibles. That’s extremely helpful. But there’s no living my life as I used to, not for a while. I’m not sure this time I’ll be able to go back completely to the “old me.”
Finally, in trying to keep in mind simple wins and accomplishments.. In the past week or so I:
- Drove to Iowa /w Wife to get child
- Finished a 1000 piece puzzle
- Continued work on a cross-stitch project
So I am still capable, just in a very different style and in more of a reactionary way. Though I am concerned about the issues, I can also see little things getting better or easier with time passing. And technically I can enjoy things more than once.
But every time I find something missing, that adds just a bit of fuel to the depression fire. I’m hoping it will happen less and less and eventually I’ll forget about the forgetting…