• Today I went back to work for the first time in a Very Long Time. I’ll be doing halftime and continuing the day treatment program in the afternoons. But it sure was nice to be back in the office. I spent the whole time playing catch-up, and while the goal is for me to fill the same role that I’ve had in the past, for now I’ll be more of a player-coach.

    Didn’t get lost in the ramp or skyways, and remembered all the security codes. Yay me! Our sub-office has been rearranged and it’s really nice. I’ve got a position by the window and enjoy a good view out the window and down the row of workers.

    By the time I left (after ~4 hours) I was fried. Working my way back up to a full day is going to take some effort. But it was exciting being there and I didn’t glaze over even in the last hour catching up with the boss. It’s also handy that it’s December, and things are a bit slower than usual. By the first of the year (or so) I’m hoping to be back up to speed, back up to full time, and back up to running my team!

  • Once a week now, while in maintenance mode. And then we go two weeks, and finally we go once a month. I had my first in a week this Monday, which went well. Came home and had a nap to let the grogginess clear, but haven’t really gotten back to 100%.

    And is it bad that I enjoy the IV? While it hurts getting poked, the sleep hitting is like being on a rollercoaster, feeling the whole world roll over your head and you’re asleep.

    Back to work on Monday, dipping my toes in lightly at first,

  • I’m going to have to stop trying to build models because they’re not turning out right. I can’t tell if it’s that I’m reading the instructions wrong or that I’m not able to do it just the right way but it seems like the thing’s I’m building aren’t working the way they’re supposed to or looking the way they’re supposed to. Which is a bummer because I was working on a Viking boat that was going to be really cool and I just don’t think I’m going to be able to finish it.

    So for my next trick I’m going to try and do some Legos. Hopefully that’ll be simple enough and non-permanent enough that I can do it and not have to worry about screwing stuff up. It’s really frustrating though. I’m also feeling like my vision isn’t that great for smaller detail elements and so that’s having something to do with my frustrations.

    Another maintenance ECT treatment on Monday and then who knows after that but I’ll be asking to find out when they expect me to be doing more treatments and how long I have to wait before I can go back to work cuz I’m really itching to go back to work. Today of course being the largest day in our work year and I’m missing it.

  • Today I had my last standard session. I’ll be coming back in a week for a follow-up session but that’s the end of the normal sessions.

    I’d like to say I’m much improved but if anything I feel I’ve slid backwards a bit. My memory is not great, and I find myself having to stop and work to remember the simplest things. My outlook is still pretty down.

    I’m tired, bored from not working, and really itching to get back to work. Apparently I need to wait a week after the main treatments end before going back to work. My family indicates I’m not all there these days and that should get better as I get further from the main series.

  • Electroconvulsive therapy (ECT) is a procedure, done under general anesthesia, in which small electric currents are passed through the brain, intentionally triggering a brief seizure. ECT seems to cause changes in brain chemistry that can quickly reverse symptoms of certain mental health conditions.

    Mayo Clinic

    The night before, I need to refrain from taking a few key meds that can interfere with the seizure aspect. That includes one med to be stopped before 6pm the evening prior to the procedure, and another one to be stopped at 9am or earlier the day prior. Also, I need to fast from midnight onward. So it’s complicated enough that if I get confused, I need to keep track of everything on paper. I can take the rest of my meds right after I get back from the procedure, though.

    Side effects can include headaches, jaw ache, muscle soreness and aching. Also, memory issues and concentration. So far it’s been temporary. Through the period in which I am having the procedures, I’m not allowed to drive , and working is not recommended. So arranging for rides to and from the hospital is a fairly large component.

    When I get there, I check in with the staff. My blood pressure and oxygen levels are recorded. We go over my meds and indicate when each one was taken last. Finally, there is a discussion about how I’m doing, how my depression is doing, and a discussion about any suicidality I may have.

    Once I’m checked in it’s down to waiting. They time it well enough that it’s not a long wait, but sometimes it draws on. And then I’m called into the procedure room.

    Funny: I wear a hoodie and a t-shirt, usually a concert shirt. So now when I choose my outfit for the next appointment, a concert tee is usually involved.

    When I enter the procedure room, there’s a quick chat with the doctor to talk about what we’re doing, how I’m doing, and other random things. Meanwhile, I’m hooked up to a blood pressure cuff, oxygen sensor, electrodes are stuck to my temples, and an IV is hooked up. I’m also offered a nice warm blanket.

    When the IV is finally in, I get a metallic taste in my mouth (presumably from the saline) and they tell me I’m about to go under. A mask is offered over my mouth and they tell me to breathe deep. The room slides away and I’m out.

    After it’s all over, I wake up and they get me into a wheelchair. I’m taken back out to the pre-lobby with a new warm blanket placed on me. I’m required to wait in this area for a certain amount of time before being released. I’m offered juice and a muffin (blueberry or bran – I always go blueberry) and it’s nice to finally get to eat something.

    When my time is up and I’m allowed to leave, I get wheeled out to the elevator and then down to the hospital entrance. Just like in the movies/television. Happily, we live close enough to the hospital that I’m home within 15 minutes, and then it’s usually right off to bed to catch up on a previous night’s sleep if it was rough, but also to sleep off the whole experience. I’ll often get those daily meds and a bunch of water for myself at that time, too.

    After my nap I usually have a pretty big lunch to make up for the fasting, and spend the rest of the afternoon lounging. Some days it’s hard to pay attention to things, other days it’s nice just to unwind.

    I do this three times a week, Monday Wednesday and Friday.

  • Part of the fun of forgetting and not remembering is the occasional recollection. Like how I keep forgetting and then remembering that my psychologist, who I really connect with, is leaving her practice. So I need to find a new one. But I can’t remember what the plan for that would be, or if there even is one. I think it’s just looking up possibilities on the psychology today web site. But I’ll forget that again soon.

    And then I’ll get to remember it all over again in a few hours or a day, and get to be disappointed all over again. It would be great if I was forgetting that I won the lottery or something, but as near as I can tell that’s not the case..

  • Spent the weekend feeling like I was ab0ut to jump out of my skin. Restless and having trouble remembering the simplest things. Started and gave up on two craft projects, a ship’s model and at least one knitting project.

    A couple of my meds actually have anti-seizure properties – and I accidentally took them on time last night. So today’s ECT would have been thrown off by the meds and thusly got cancelled. So I feel dumb on top of dumb, and my schedule gets pushed out another day. Meanwhile, I’m still forgetting things and feeling like a space cadet.

    Sometimes it’s hard to tell if it’s the depression, the treatments, or the meds making me feel good or bad or up in arms. But I’m feeling about as out of sorts as I ever have, and it’s frustrating as hell. Everybody is being super supportive though, which helps.

  • Waking up felt like waiting up for the first time. Everything seemed familiar, yet new. I had to be reminded of a few scheduling things, and there’s a general sense of “new” to everything. It’s pretty surreal.

    And this anecdote from the wife about yesterday:

    Coming out of bilateral ECT Wednesday, I asked if you would be up for Group in the afternoon.  You replied “Group?  What is Group?”  I said it was your therapy group led by <therapist>.  “I’m trying to picture it.  I just don’t know what it is.”  I called <therapist> to report the situation and say I didn’t think you could make it.  After hearing that, you said “I feel bad.  I think I like <therapist>, but I don’t know who she is.”

    Wife
  • Just want to start off by saying how great the staff at the hospital are – from the front desk to the folks doing the procedure. I may mention the odd electrode left over or this or that, but everyone is very professional, and personable at that.

    Today’s experience was a good bilateral treatment. Immediate after effects were a fair bit of headache, some minimal dizziness, and a good bit of disorientation. Forget trying to remember what day of the week it is – the rest of my schedule is a blur. I don’t feel like I have any specific cognitive loss, and my short term memory seems to be filling nicely with new facts. But trying to remember my schedule, when and where group is, etc. proved to be much more difficult.

    I’m well attended to, and after a quick ride home I went straight to bed for a long nap. That helped the headache and did manage to clear my mind a bit. It doesn’t help that it’s our first snowfall, so my world before and after this morning are two very different places. While this is an interesting experience, the intensity of Monday and the intensity of today make me wonder just how Friday is going to be! We shall see!

  • After a horrible night’s sleep, I went in for my seventh treatment.

    The weekend saw no improvement in the depression, so my care team and I decided to switch from unilateral to bilateral on the ECT.

    From Wikipedia:

    In unilateral ECT, both electrodes are placed on the same side of the patient’s head. Unilateral ECT may be used first to minimize side effects such as memory loss.

    In bilateral ECT, the two electrodes are placed on opposite sides of the head. Usually bitemporal placement is used, whereby the electrodes are placed on the temples. Uncommonly bifrontal placement is used; this involves positioning the electrodes on the patient’s forehead, roughly above each eye.

    Unilateral ECT is thought to cause fewer cognitive effects than bilateral treatment, but is less effective unless administered at higher doses. Most patients in the US and almost all in the UK receive bilateral ECT.

    Wikipedia entry on ECT

    The result was a bit more of a headache than usual, and something I wouldn’t describe as confusion, but more like ignorance. Example: When I get home I’m able to take my daily medications. When I went to my pillbox it took a moment to remember what day of the week it was. Not like I had forgotten, but just that I didn’t know. Wife says I’m a bit different today, so she’ll keeping a closer eye on me. Smart girl.

    I did come home and sleep for a few hours, which helps the exhaustion but doing normal tasks takes a little more effort. Happily, I’m still able to use the TV remote. 🙂